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Sneaky Little Changes
Faith / Medical

Sneaky Little Changes

Sneaky. This incredibly slow moving progression is so sneaky. I get lulled into thinking my ALS symptoms are pretty stable. Then…wham! Things change. When my hospice doctor was here last week, I told her about a couple concerns. Small things, really. But they have the potential to grow. My right hand is slowly contracting into … Continue reading

Spa Time
Attitudes / Happenings

Spa Time

Now that we have a home health aide through Hospice, Alan’s role when I am bathed has been changed to “assistant”. He had been doing the whole job alone and it wore him out. For that reason, I used to feel a little guilty about enjoying my shower and shampoo. The goal was to get … Continue reading