It began as a way for me to process what was happening to me – this blogging thing. A clearly progressive disability was producing a cascade of emotions: fear, worry, confusion, grief, hopelessness, anger. To sort it all out, and to provide some distraction, I began writing about this journey one year ago tomorrow. What was soon diagnosed as ALS, or Lou Gehrig’s, changed our lives. We had to learn a new “normal.”
We’re certainly not unique. So many people are dealing with devastating illnesses, debilitating injuries, and more. You never know what tomorrow may bring. Yet worrying about the “what-ifs” does nothing to prepare us for the future. Worry just robs today of its joy!
I’ve been fighting a bit of a cold since Monday. First one in a long time. So long, in fact, that I have been very frustrated with my now uncooperative fingers when I attempt to blow my nose. Ugh! Fortunately the cold seems to be letting up already.
Speaking of my uncooperative fingers, I’m typing this using a highly sophisticated and technologically advanced method suggested by my caregiver, Deanna. We’ll call it “The two pencil eraser method.” Yep! It’s working pretty well! My curly fingers were “rolling” all over the other keys causing lots of backspacing and re-typing. But by wedging a pencil in each fist, eraser end down, this is working much better!
So why am I not using the Dragon Speak software I bought? Well, we’re having trouble installing it. It seems Microsoft needs to do an update first, but when we try to do that update, everything grinds to a halt. The little “working” icon just spins forever, or until we finally give up and cancel. We gave it hours. Several times. Looks like we need to find a Windows guru, pronto.
[UPDATE: Thanks to a good friend in Virginia, Dragon has now been successfully installed. In fact, I am now dictating this update using Dragon. Yay!]
My bi-PAP is working beautifully! I’m amazed that I’ve adjusted to using it so quickly. Now, this is some high-tech piece of equipment! Did you know that it actually contains an SD card? Yep. Just like your camera or cell phone! It records how often and for how long the device is used Some insurers – Medicare is one, we’re told - require this information. If you’re not using it as prescribed, bye-bye bi-PAP! I don’t believe our insurance requires us to provide them with the SD card. But if they ask for it, I’m tempted to send them one filled with pictures of Henry. Cat pictures make everyone happy, right?
Well, almost everyone.
One of my goals back when I started blogging was to share the things for which I’m so grateful. God just keeps on blessing me. Here’s a partial list for today:
- Music! I keep discovering both familiar and new music online and I love it all!
- Air conditioning! Here in So Cal we’re just heading into the hottest part of summer. It lasts until…oh…about Thanksgiving.
- Hummingbirds! They visit every day! Well, they visit the Bougainvillea outside my window every day.
- Books on Kindle! Can’t turn pages but I can still read.
- My family! ‘Nuff said.
- Our church family! They hold us up in prayer and are such encouragers.
I could go on and on but I’ll save some for another post. Thank you for stopping by today. Remember to watch for your blessings!