I promised to “keep it real” on this blog. Some have encouraged me to write even on the blue days. Somehow I just can’t get up the energy to do that. But today, the clouds that have been hovering about me these past few days have drifted away a bit. So here I am!
Why the clouds? Well, it seems having ALS is like traveling down a curving road toward a particular destination and being taken by surprise now and then by unexpected events/difficulties/obstacles. My destination? Heaven. As a believer in Jesus Christ, this much I know. But my journey isn’t always delightful.
The progression of my disease is slow enough that new problems sort of sneak up on me. This past week or so I’ve become painfully aware of just how weak my hands and arms are becoming. I’ve been practicing with Dragon (voice recognition software) but don’t yet feel comfortable using it to blog. So, once again, the two-pencil method is being employed. And I find it necessary to rest between sentences.
Had a cold this past week. It’s better now. I can still get a Kleenex up to my nose but no longer have the strength to keep it there long enough to blow my nose. So Alan added another skill to his growing resumé: nose-blowing assistant. I tried to laugh about it, but this really got me down. Can’t even blow my own nose. Ugh.
This of course led to more dwelling on my growing list of “cannots” which now includes the scratching of most itches, page turning, and holding anything heavier than a cell phone or TV remote. The blues settled in for a nice long stay, much like an unwelcome houseguest. The time had come to kick ‘em out.
So I’ve been getting a little proactive by listening to music with headphones, watching some good movies and TV, and reading some excellent books, devotionals, blogs, and best of all, my Bible on my Kindle. It’s working but I feel I’m going to need to be vigilant in order to keep those blues at bay.
The road ahead curves ever onward. No doubt a few of those curves are going to reveal a few surprises. I hope to armed and ready.
Therefore put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. Ephesians 6:13
Armor up, my friends.