Coming up later this month is the annual fundraiser for the ALS Association. It’s called the Walk to Defeat ALS and will be held on Sunday October 20 here in San Diego. I have been giving a great deal of thought to this, and had even begun the registration process to create a team to participate in the walk.
Trying to keep it real, as I do I here, I need to share with you all that I was having conflicting feelings about participating in an event that takes place on a Sunday morning. Sunday mornings have become pretty important to me as our time to go to church, connect with friends and family, and generally give me my spiritual shot in the arm for the week. The Saturday before the walk is the day of our ALS support group. So we will have spent some time that day with our ALS friends, some of whom I believe plan to participate in the walk.
So, I think I’ve come up with a better plan – at least for me. I hope you agree. The ALS Association does wonderful work and has been so supportive of us. The lending closet has provided us with a Hoyer lift and a shower chair. It’s possible we may borrow more equipment in the future. The people there are so positive and encouraging. Nationally, they provide information about the disease, links to resources, education, and funding for research. I’ve decided the way I would like to participate in the fundraiser this year is to share a link to the page – and an address – where you can make a donation to this cause if you feel so led. Some day, I believe, science will find answers and a way to truly defeat ALS.
To make a donation online go to the ALS Association donation page.
To send a donation, mail to: The ALS Association, Greater San Diego Chapter, 7920 Silverton Ave., Suite E, San Diego, CA 92126
I share this information not for myself but for all who have been affected by this horrible disease. Before I was diagnosed I was under the impression, as are many, that ALS is a “rapidly progressing” neurodegenerative disease. In fact, I still see this term used sometimes by misinformed journalists. Yes, sometimes it does move very quickly. But, in fact, more than half of the people who are diagnosed with ALS live longer than three years. And 20% live longer than five years from time of diagnosis. (See more stats here.)
Thank you everyone for your support, financial or otherwise! This is one disease that no one can fight alone. I am so blessed by those who care for me and encourage me. You mean the world to me.
As I write this, it is day two of the government shutdown here in the USA. I would very much like to write an entire post on this subject. However, since I try to keep this blog as positive as possible, I can’t! I am so angry and disgusted with politics that to devote this space to that subject would serve no useful purpose. So, instead I think I’ll go watch last night’s episode of NCIS online since I missed it last night! Escapism! Yes! That’s what we need now! (Yeah, yeah, yeah…I know Ziva leaves. Sniff )
Try not to watch too much news. Not good for you! Just keep looking for the blessings and choose joy!