Happenings / Medical

Sweet Moments

This part of the journey is full of sharp turns, rough patches, bumpy stretches, and is sometimes just plain unpleasant. But this is also a time filled with precious moments.

It is a struggle now to type. I can’t put all the blame on Tobii. My eyesight is definitely changing, most likely due to a cataract in my “good” eye. So I’m not sure how much more writing I can do.

Tears are a problem, too. They just happen more often these days. Can’t see a thing with teary eyes. Besides, crying steams up my glasses.

Gifts and blessings
A beautiful prayer quilt, a gift from some kind people, most of whom don’t even know us.lcpcqlqinsc

Special visits from very special friends.

 

Our church and my handbell peeps pulling off a delightful “mini-concert” on Sunday. This was no easy feat, I know.aa1e6f68-4f52-4302-98d0-1e39ec8ea4aacgapkbls12391207_915019611884627_148337628819030988_nmmnblz

Pet therapy with hospice dog Bonnie330e83a4-999d-4f2e-9030-566c5f9f568f

A very special, intimate, scaled-back and moved up wedding to be held in just a few days in our own backyard.handsc

Heart-to-heart moments shared with precious people, with or without words.

Remembering that day 38 years ago this Thursday when Alan and I took our vows.

December 17, 1977

December 17, 1977

The challenges
So much to be thankful for. But it’s so hard when the “anxiety” or “panic” or whatever it is hits. Sometimes my muscles – the few that can – clench violently, especially my jaw. It’s happening nightly now. Hospice is working hard to help get this under control. They have been wonderful.

Typing. Period.

So much more to say. pb12154

But the things that matter most have been said.

Thank you.

I love you.

God is faithful. I trust Him.

Love, Patty

 

19 thoughts on “Sweet Moments

  1. I love you, Patty. Your last couple of posts have made me cry. You are such an amazing and beautiful person inside and out. I wish with all my heart you didn’t have to suffer so. I will keep your eyes in my prayers – I know how much writing means to you and how much it helps you so this is definitely on my prayer list. Your wedding photo is gorgeous. Wow!!
    Hang in there, sweetie. Sending you a hug!

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  2. Patty, you don’t know me but I just wanted to tell you how much I’ve appreciated your blog. My husband has ALS so though I know each ALS patient is different, I have related to many of the things you have written about. We also are believers and your faith has been an encouragement. God bless you Patty and our prayers are with you. Linda

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  3. Patty, although we have never met, I feel akin to you, perhaps because we are related, but mostly because of your spirit of kindness, gentleness and inspiration. I’ve felt selfish sometimes struggling through my own issues when I realize what concerns me, is nothing compared to the challenges you’ve faced so bravely. I would have preferred that we would have met before, but know that you are in my heart, my prayers and in ways in my spirit as well as you’ve touched me. I love you. Dan

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  4. Patty,
    We don’t know each other but I follow you in your blog. My husband is recently diagnosed with ALS. You are an inspiration to me. I love the positiveness that you show. Praying for many showers of blessing on you.
    Xoxo.
    Rebekah

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  5. I think of you often and pray for you. I just signed up for an ALS walk in Orlando, FL in memory of my brother. If only people could be grateful for the small things in life, the big things will fall into place with God’s help. Your small intimate wedding will more beautiful and more meaningful than a large event. I would like to Wish you a very Merry Christmas and may God richly bless you and yours in the New Year. Sending my love!

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  6. The Sunday service was beautiful and meaningful to all of us who could join you for it. I was so glad to be able to be a part of it, and to see you and hug you again. I’m sure the wedding will be beautiful, and am happy it will be in just a few days. Love and prayers, a part of my experience every day.

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  7. Good morning my darling, brave sister.,….I will see you soon. Being up in Ramona hinders some long drives to La Mesa, so on Saturday I will come down for our very special occasion for your beautiful daughter’s marriage to a very wonderful gentleman, Jeremy. High noon we will all be together to share in their loving commitment. Hugging you in my heart and mind at all times, so keep warm and full of the faith that sustains us all. It works. Vivi

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  8. Patty, your messages have come to be a very special part of our lives. Very best wishes to you and Alan for a wonderful day Saturday.
    Peter

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  9. Patty, you have touched so many lives with positive messages and always your faith. Where would we be without our faith??? I asked that many times when my daughter, Beth Ann, lost her full-term baby because there was no doctor to help her when she needed. So thankful. Grateful. To God, to Jesus. To you for your given words that remind us. It’s a privilege to know you, dear sister. Prayers and love.

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  10. Dear, miss Patty, my name is Meidys Trice, I am from Cuba, but I came with my beloved and sweetheart to live in GA back in 2005, first of I want to let you know that I am so happy to hear your testimony on Quest magazine, I receive those editions so often, I am so thankful and I am so proud of you, that no matter what you are going thrue, you are strong because of JESUS in you, I love the way you said about to be thankful, I want to let you know that I know 100 percent for sure that your strength comes from the LORD JESUS, He is an GREATER AWESOME GOD,

    Let me tell you a little bit of my life, my sweet husband is now in the presence of GOD, he suffer with the desease, also, he was in the last stage, where respiratory failure came in, respirator, feeding tube, foley catheter, deep trach suction, any way depent on life support to be able to breath, paralyzed complete,

    But prise d the LORD from all goods things comes from, He lived 7 years and a half, I took care of him, with some nurses at some hours, but he needed two people full time, I was able to be there for him, 100 porcent, GOD so, that gave me the opportunity, to be in my husband life, GOD had alla in plan, He accepted the LORD two years prior to die, and I did a year prior to him, When he had JESUS all our lives turned around, and GOD gave us peace about all,

    I want to tell you that you are in my prayer, and please if you need anything do not hesitate, to ask maybe in someway I could be helpful, I Love you my sister, and I am so proud of you, continue like this, you know HE is our HEALER in all things, hope you are doing better

    Meidys, from a sister in CHRIST, in Georgia.

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