What a wild and wonderful and weird and wacky ride the past few days have been. Wild and crazy new symptoms requiring extra hospice nurse visits and new medications (& their sleepy effects. Note: Tobii use requires the user’s eyes to actually be open in order to function properly. Imagine that.)
Wonderful wedding right in our own backyard. So sweet, small and almost perfect. Well, there’s always something, right? The wedding cake was lovely and delicious, covered in yummy chocolate buttercream…instead of white fondant the bride was sure she ordered. Oh well, it was still delicious.
The florist/wedding coordinator transformed our yard into a lovely romantic garden with flowers, lanterns, birds, and other assorted finery. The weather cooperated beautifully with temps cool enough to keep the bride happy and the forecasted rain delayed until late that night.
Last month, when we accompanied D#1 to her dress fitting, I had Alan take some pictures. Now…you can see them!
On wedding day, it was such fun listening to the girls chatting and giggling as the stylist did their hair. All the pre-wedding bustle went on around me in my chair. At the appropriate time, I was wheeled into position, and then the father of the bride went to escort our firstborn down the “aisle” pathway to the lovely decorated pergola and the waiting groom.
The ceremony was short, sweet and very moving. The minister had asked them to share individually with him the reasons each knew the other was “the one.” I don’t remember the exact words as he read what they had written, but it was one of several teary moments for me that day.
It may not have been the party they envisioned back when they got engaged nearly a year ago. But it was no less lovely. And I’m so glad I got to see it. Mom, too.
The weird and wacky part of the past few days has to do with a Tobii glitch necessitating a call to tech support and the resulting download of a newer version of the Communicator software. It threw me at first, but I’m liking it more every day.
So, on to Christmas! It’s pretty low-key around here. We plan to attend our church’s always-moving Christmas Eve service. Then on Christmas day, we’ll head over to Mom’s for their special midday dinner. The chef there never disappoints.
ALS continues to make life…interesting. My anxiety issues are mostly under control, and we are learning through trial and error how to time my doses of the helpful, but potent, medications. I’m also finding the oxygen helpful more than before.
Merry Christmas, everyone! May you be blessed with the deep peace of Christ, the light of the world.