Kristina is typing for me once more as I am still having problems with Tobii. These problems could be due to a couple of factors: the medications I am taking make me sleepy and that makes it hard for Tobii’s cameras to see my eyes. Also, the cataract in my left eye is much worse. And it is possible I may be developing one in my right eye. Everything is harder to read these days.
I want to thank everyone for all the lovely messages of support, love, and prayers. Every day someone reads me my email and helps me scroll through Facebook. Sometimes I can manage on my own, but it is tiring.
On top of all this ALS stuff to deal with, I have now developed a lovely case of thrush. AKA: an oral yeast infection. They took a swab the other day after a ten day course of medication failed to clear it up. It is thoroughly disgusting, I can assure you.
While we are sharing the “not-so-nice” bits (“keeping it real”) I might as well say that having a catheter is both good and bad. The panic attacks have pretty much stopped, since we no longer need to take me to the bathroom, where most of them happened. But catheters can have their own problems. We have been learning about these first hand. On the whole, I think it is a good thing.
I am going to post this over at the blog as well. Some have asked how they can see my blog posts. Just type in your browser or search pattysoksofar.com.
Or you can click here
So, now we wait. I don’t know what God has planned for my exit, but I am ready when He is. Thank you for praying for us. This is the hardest part. We are both so tired, but we still try to find the little joys each day.